Kira: From Washington to Chile and STILL Making a Difference
Some of you may recall that I spent six weeks in Washington, D.C. last summer as an intern with Kids v. Cancer. Remember all my terribly awkward Facebook Live videos? Well, I for one have tried strenuously to forget them, so maybe we should refresh our memories! I went to D.C. as a pediatric cancer…
For Too Many Kids September Doesn’t Mean Back to School
I can’t believe I’m writing about Childhood Cancer Awareness month again. I can’t believe this is the sixth Sept that Michael is gone. No Back to School for him or the thousands of other children who have lost their lives to cancer. What a shame…how unjust If you have children grumbling about going back to…
Cavatica
Hopefully you read my earlier blog on ISPNO, the International Society of Pediatric-Neuro–Oncology. I wrote that several doctors spoke on how fundamental the need for tissue is for their cancer research. Swifty’s Post Mortem Tissue donation program was seen as an excellent way to facilitate getting tissue to the labs where it is needed. “Big…
Kayleigh Eisenstein – Tissue Navigator
You know how some things are sweeter because you had to wait so long to get them? Something you dreamt up, worked hard for, had to convince others about? When the planning, waiting, anticipating is finally over and it finally comes to fruition the feeling is indescribable. That’s how we felt on Friday when David…
Why is Tissue Not Sexy?
Denver is a great city… just not as “hippie/granola” as I pictured. We went for ISPNO… the International Symposium on Pediatric Neuro-Oncology and came away feeling encouraged and excited that tissue donation is absolutely the right focus for Swifty. ISPNO is held every other year and doctors and researchers from all over the world attend. …
Accepting Help From Others
I’ve been taught that when I am faced with a difficult situation, or when things don’t turn out as I would have liked, to ask myself, “What lesson am I supposed to learn from this?” Since losing Michael it feels almost like a mantra…. There have been many lessons to learn and a particularly difficult…
3rd Party Fundraisers
One of our favorite things at Swifty is our 3rd party fundraisers! These are events that people develop on their own, they do the work and we get the money!! See what I mean…. It’s the best! So far in 2018 there have been 22 third party events raising $29,392.65! Isn’t that incredible? These events…
CBTTC Annual Conference Update
In May, Ginny McLean, Nikki Lyons and Al Gustafson represented Swifty at the annual conference of the Children’s Brain Tumor Tissue Consortium (CBTTC) in Philadelphia. Swifty is part of a fourteen foundation advisory council serving as a resource for the CBTTC. Unique in the world of philanthropy, the foundations function as a collaborative to advise,…
We hear it over and over again.
Our first year at ASPHO was one for the books. It was amazing to be around so many other people dedicated to the cause of fighting pediatric cancer. There were representatives from hospitals and foundations from all over the world. Seeing a case study presentation by hospitals in areas from Egypt to the U.K. to…
Remembering Pauline Robinson “Robin” Bush
As the country celebrates the life of Barbara Bush, we also remember her daughter, Robin, who in 1953 was diagnosed with leukemia when she was three years old. At the time, cancer was a taboo subject and most people had never heard of the word leukemia. The Bush’s had taken their daughter to the hospital…
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