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Blog

Swifty Featured on ABC 7 News – Chicago

Together Toward Hope To honor the 5th anniversary of Michael Gustafson’s death, the Swifty Foundation was featured on ABC 7 News Chicago. The segment highlights Mikey’s master plan, how Swifty is accomplishing it, and the details of Kira Couch and Caitlin Holzer’s Shaving for Hope! event. “I’m going to give my life up and we’re going…

posted on January 19, 2018
    News
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Caitlin’s Experience

Caitlin Holzer was part of a duo who recently shaved their heads and raised over $8,000 for the Swifty Foundation. Not only is her fiscal impact impressive, so is Caitlin herself. Her activism in the causes she cares about accurately exemplifies her remarkable character, and her passion for giving back depicts the inspiration that she…

posted on January 12, 2018
    Advocacy ● From The Heart ● News
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Why We Need a Tissue Navigator

The importance of tissue donation begins when a parent hears the life shattering news, “your child has brain cancer.” Had we known how important tissue is not only to scientific discovery, but also to a child’s cancer treatment plan, Michael may have had a very different journey. Let me explain. Cancer treatment is becoming more…

posted on November 29, 2017
    Annual Appeal ● Family Support ● From The Heart
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That’s Your Boy

It’s Michael’s birthday week! To celebrate I want to share an AMAZING story with you that I still can’t believe happened. In the past several years I have been frequenting pediatric cancer conferences (should have been a STEM major not a CPA, but who knew?). At a meeting in August, the question discussed was how…

posted on November 16, 2017
    Annual Appeal ● Family Experiences ● From The Heart ● Research
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Michael’s Master Plan – Impact

Twenty years old! Michael would be leaving his teen years behind next week but in my mind he will forever remain a teenager. His twin sister Bridget shows us each day what Michael could be accomplishing had he survived.   And the reality is, despite his death, he is still making an impact every day. Michael’s…

posted on November 13, 2017
    Annual Appeal ● From The Heart
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Farewell DC

Although I have enjoyed every moment of this past month and a half, this last week of my internship has definitely been the best. I say that because, in the past week, I saw my work here come full circle. I spent Monday being trained on how to train other youth advocates. The following day,…

posted on July 25, 2017
    Kira Goes To Washington
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Making Michael Proud

I start every meeting by opening my padfolio (that frankly took way too long to find at Office Max). In it, I have a few talking points scribbled down that I make sure to cover in every conversation I have about RACE. I try not to make my pitch seem too scripted, but I almost…

posted on July 20, 2017
    Advocacy ● Kira Goes To Washington
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Catching the Law Up With Science

The RACE for Children Act is an update of the Pediatric Research Equity Act (PREA)which requires drug companies to develop their drugs not only for adults, but for children as well. The second loophole in PREA has to do with the scientific understanding of cancer. In the past, cancers have only really been identified by their physical…

posted on July 19, 2017
    Advocacy ● Kira Goes To Washington
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Orphan Drug Exemption Loophole

Loophole 1: I am in Washington D.C advocating for Congress to pass the RACE for Children Act. I bet some of you are wondering what is the RACE Act, why is it important and why is the Swifty Foundation supporting it. The RACE for Children Act is an update of the Pediatric Research Equity Act…

posted on July 19, 2017
    Advocacy ● Kira Goes To Washington ● News
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It’s Not Just About the Research. It’s About the Kids

Most of our meetings are with young people. This past week, though, we had a meeting with a Senior Legislative Assistant who happened to be a bit older. This was a nice change of pace; she opened up a whole different dialogue with us and offered a unique perspective. When we were done with our…

posted on July 18, 2017
    Advocacy ● Kira Goes To Washington
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Michael Gustafson created the Swifty Foundation before his death at age 15 to raise awareness and funds for pediatric cancer research so that: “No other child will have to go through what I did.”

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