Working Together – The Four Pennies Initiative
Steve Jobs observed that great things in business are never done by one person, but only by a group of people. If great things are to happen for children’s cancer research, the same truth will apply. As the steward of a family foundation, the question that arises from my circle of influence is how can…
Naperville Graduate Hikes Pacific Crest Trail For Pediatric Cancer Research
Naperville Native Takes First Steps of Rigorous 2,659-mile Hike Along the Pacific Crest Trail For Immediate Release March 21, 2018—Woodridge, IL—Medical student and Naperville grad Eric Montgomery just logged the first steps of his solo 2,659-mile hike from the Mexican border to Canada. Montgomery is tackling the iconic Pacific Crest Trail (PCT) to raise awareness…
Swifty Featured on ABC 7 News – Chicago
Together Toward Hope To honor the 5th anniversary of Michael Gustafson’s death, the Swifty Foundation was featured on ABC 7 News Chicago. The segment highlights Mikey’s master plan, how Swifty is accomplishing it, and the details of Kira Couch and Caitlin Holzer’s Shaving for Hope! event. “I’m going to give my life up and we’re going…
Caitlin’s Experience
Caitlin Holzer was part of a duo who recently shaved their heads and raised over $8,000 for the Swifty Foundation. Not only is her fiscal impact impressive, so is Caitlin herself. Her activism in the causes she cares about accurately exemplifies her remarkable character, and her passion for giving back depicts the inspiration that she…
Why We Need a Tissue Navigator
The importance of tissue donation begins when a parent hears the life shattering news, “your child has brain cancer.” Had we known how important tissue is not only to scientific discovery, but also to a child’s cancer treatment plan, Michael may have had a very different journey. Let me explain. Cancer treatment is becoming more…
That’s Your Boy
It’s Michael’s birthday week! To celebrate I want to share an AMAZING story with you that I still can’t believe happened. In the past several years I have been frequenting pediatric cancer conferences (should have been a STEM major not a CPA, but who knew?). At a meeting in August, the question discussed was how…
Michael’s Master Plan – Impact
Twenty years old! Michael would be leaving his teen years behind next week but in my mind he will forever remain a teenager. His twin sister Bridget shows us each day what Michael could be accomplishing had he survived. And the reality is, despite his death, he is still making an impact every day. Michael’s…
Farewell DC
Although I have enjoyed every moment of this past month and a half, this last week of my internship has definitely been the best. I say that because, in the past week, I saw my work here come full circle. I spent Monday being trained on how to train other youth advocates. The following day,…
Making Michael Proud
I start every meeting by opening my padfolio (that frankly took way too long to find at Office Max). In it, I have a few talking points scribbled down that I make sure to cover in every conversation I have about RACE. I try not to make my pitch seem too scripted, but I almost…
Catching the Law Up With Science
The RACE for Children Act is an update of the Pediatric Research Equity Act (PREA)which requires drug companies to develop their drugs not only for adults, but for children as well. The second loophole in PREA has to do with the scientific understanding of cancer. In the past, cancers have only really been identified by their physical…
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