Love and Comfort in the Final Days

If I had a choice, I would be an “expert” on how the brain works, American history or songs from the 70’s. Unfortunately, I have just a little knowledge of those interesting topics. I do however have experience in losing a child to cancer, not a topic anyone would ever sign up to learn about….

Meet Melissa Williams

I’m Melissa Williams, the new Tissue Navigator at Lurie Children’s Hospital. More than fifteen years ago I began a journey with donation. I worked for Gift of Hope Organ & Tissue Donor Network as a liaison with funeral directors and forensic professionals. At that time there were obstacles that were standing in the way of…

Gift from a child….for a child

In December, Swifty convened a Family Forum in Philadelphia of families who had donated their child’s post mortem brain tissue. Not exactly your typical holiday gathering, but so much good has come out of our time together. In the coming months you will be hearing a lot about the initiative that was launched at the…

Kayleigh Eisenstein – Tissue Navigator

You know how some things are sweeter because you had to wait so long to get them? Something you dreamt up, worked hard for, had to convince others about? When the planning, waiting, anticipating is finally over and it finally comes to fruition the feeling is indescribable. That’s how we felt on Friday when David…

Accepting Help From Others

I’ve been taught that when I am faced with a difficult situation, or when things don’t turn out as I would have liked, to ask myself, “What lesson am I supposed to learn from this?”  Since losing Michael it feels almost like a mantra…. There have been many lessons to learn and a particularly difficult…

We hear it over and over again.

Our first year at ASPHO was one for the books. It was amazing to be around so many other people dedicated to the cause of fighting pediatric cancer. There were representatives from hospitals and foundations from all over the world. Seeing a case study presentation by hospitals in areas from Egypt to the U.K. to…

Why We Need a Tissue Navigator

The importance of tissue donation begins when a parent hears the life shattering news, “your child has brain cancer.” Had we known how important tissue is not only to scientific discovery, but also to a child’s cancer treatment plan, Michael may have had a very different journey. Let me explain. Cancer treatment is becoming more…