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Blog

Orphan Drug Exemption Loophole

Loophole 1: I am in Washington D.C advocating for Congress to pass the RACE for Children Act. I bet some of you are wondering what is the RACE Act, why is it important and why is the Swifty Foundation supporting it. The RACE for Children Act is an update of the Pediatric Research Equity Act…

posted on July 19, 2017
Advocacy ● Kira Goes To Washington ● News
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It’s Not Just About the Research. It’s About the Kids

Most of our meetings are with young people. This past week, though, we had a meeting with a Senior Legislative Assistant who happened to be a bit older. This was a nice change of pace; she opened up a whole different dialogue with us and offered a unique perspective. When we were done with our…

posted on July 18, 2017
Advocacy ● Kira Goes To Washington
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Michael Gustafson created the Swifty Foundation before his death at age 15 to raise awareness and funds for pediatric cancer research so that: “No other child will have to go through what I did.”

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